This list of resources will grow as I learn more and with your input. Please send me titles and links to your favorite websites, books and organizations.
Thanks for your input!
have helped others in your situation
Resources list:
- https://fragilex.org/ (National Fragile X Association)
- https://www.autismspeaks.org/ (an advocacy group that has increased global awareness of autism and works to increase research and access to care and support)
- http://www.nami.org/ (National Alliance on Mental Illness)
- http://www.ucdmc.ucdavis.edu/mindinstitute/ (an international research center committed to the awareness, understanding, prevention, care, and cures of neurodevelopmental disorders)
For counseling, I recommend:
- If you live in Texas, Melissa Allen (licensed therapist) is available for phone or in-person counseling. For more information, visit her website at http://melissanallencounseling.com/
- If you live in Washington State, Catharine Asay (licensed therapist and mother of an adult with special needs) is available for phone or in-person counseling. Contact her at https://therapists.psychologytoday.com/301891
- Shannon Huntsberry works with neuro-diverse individuals who are not typically seen as having a diagnosis or obvious impairment (mainly adults and teens). She does in-person and distance counseling. For more information about her, visit www.shannonhuntsberry.com.
Fragile X, Fragile Hope: Finding Joy in Parenting a Child with Special Needs
This book tells the beginning of our story. It chronicles the first seven years of Zack’s life—from my first concerns that he was different to finding a diagnosis, to coming to a place of peace. To my surprise, I’ve found great joy in being Zack’s parent.
